Thursday, October 31, 2013

Halloween fun

What were we for Halloween?
I am a robot!
I am a unicorn!
I am in need of a new family.
You are not Phia.
You love us Phia !
You two are so ...
That is not quite what I was thinking.
Mom's notes-
Happy Halloween and happy last day of Down syndrome awareness month.
I hope everyone enjoyed my little facts about Gabriel. He us an amazing young man. You can't help but fall in love with him. 

Wednesday, October 30, 2013

Sneak peak

Guess what I am for Halloween...
Guess what I am going to be for Halloween.
Guess what I am going to be for Halloween.
Mom's notes- 
My children are super lucky. Their grandma is an extremely talented woman. We met up and my children now have unique one of a kind practical Halloween costumes. Who else can say that? 
Gabriel is my texture kid. When he was young he liked taffy books but not taffy material. He preferred 'seatbelt' material. There was something about the roughness and his tongue. He is a very lucky young man because his grandma has always sewed whatever he needs. Gabriel has a small waist com paired to his height. Grandma has made some spectacular pants for him. 

Tuesday, October 29, 2013

The giant pumpkin...

I'm still not feeling well.
I did have fun at school today.
Check this out.
Mom can we please carve Gabers and my pumpkins while Gabers sleeps?
I know what we can do with Gabers pumpkin...
Phia, we made it for you.
Momma feed Phia BooBoo so she will smile!
Did that fix your attitude Phia?
What attitude?
Nevermind Phia, say cheese.
Bigger smiles Phia.
How's that?
I'm so cute!
Mom's notes-
Today is my 1500th blog post!!!!
Did you read the last line in Gabriel's note today? He had jello during the picky eaters group. He actually touched, played with AND tasted his jello today! 

Monday, October 28, 2013

Case of the Mondays

But I don't want to get up.
Okay, okay I am dressed, I still don't want to get up!
I don't want to get up either Sophia.
Will somebody please tell Isabella to have a case of the Mondays like a normal person?
I'm too busy for a case of the Mondays!

Mom's notes- 
As many if you have followed, Gabriel doesn't really sleep much. Many children with Down syndrome appear to not sleep much. We know Gabriel has sleep apnea even after T&A removal and an adenoid scrape. A C-PAP machine keeps being brought up to assist Gabriel with his breathing so the sleep he gets is of better quality. We believe Gabriel is at an age where he might finally decide to wear a C-PAP mask. I have to be honest it is scary to sit there holding (the upright position is where he gets his best sleep currently) a sleeping Gabriel counting howling he goes between breaths. 

Sunday, October 27, 2013

Six months old

Man, I want to be six months old again.
I don't Sis!
What happened Gabers?
I had heart surgery right before I turned six months old.
Wow, did that hurt Gabers?
Of course it hurt Isabella!
I honestly don't remember Sis.
Well, I bet it hurt Gabers!
Oh Isabella!
Excuse me you two, I may not want to go back to being six months old but I still want my turn with that awesome hat!
Mom's notes-
It is good to look back and see how far we have come. Gabriel is the strongest and healthiest he has ever been!
Happy six month's Sophia!