Well, we had out first appointment with the cardiologist after Gabriel's surgery. He has higher pressure in his right lung and more regurgitation on the right side of his heart than when we left the hospital. We will be upping the sildenafil (Viagra) and waiting three weeks to see if that works. We are in a waiting game at this point. Our cardiologist did remind us that sometimes children require more surgery. One day at a time I guess. Our cardiologist and his office are GREAT. They explained every step of the echo. The cardiologist came in and read the echo in front of us explaining things as he went along.
On the other hand Gabriel has to make it to the 25th of March to begin to stop taking the Portagen. He will add 25% formula for a week (x-ray), 50% for a week (x-ray), 75% for a week (x-ray), then 100% (X-ray). If all x-rays come back clean along the way he will be off Portagen in two months! Course he is eating it on his own now. It is so good to see him eating on his own and not having to "tube" him!
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keeping Gabriel in our prayers!
ReplyDeleteOh girl...one step at a time. Glad to hear that you dont have to mess with the feeding tube. I bet the little man loves not having it too! Let me know if either of you need another 'dinner' (or if Gabe does). Prayers for all of you (especially prayers for more sleep in the near future).
ReplyDeleteKelly
Rejoicing in hope; patient in tribulation; continuing instant in prayer; I hope all gets better soon so you can look back on this and say thank god my baby is finaly done with all this stuff and you guys will be able to to start enjoying the time together more and maybe we can see mor of little guy's smile more. luv ya kiddo (nate)
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