We have professional developement next friday, 3/27. So I really do have to work but it is not the same as having students. The friday afterward is our first day of spring break:) We have the first whole week in April as spring break.
I can't wait to get some quality time in with Gabriel and Gabe. We have had some amazing help these last three weeks. Gabriel's Grandma Hubert stayed with him the first week, his Great-Aunt Billi the second and his Great-Grandma Mathias the third week. Of course his Grandma and Grandpa Purdy got to see him on a very regular basis in there. It is now our little families time.
Gabriel sees the cardiologist on Wednesday next week. I will not be able to attend this appointment, it is KILLING me. Gabriel will start on his 25% regular formula and 75% portagen diet which he will be on for a week. He will then have a x-ray to see if we can add more formula. We are hoping the pressure in his lungs is down and the right valve is working better after the dosage of viagra being upped over the last few weeks.
Gabriel is still having trouble sweating through his clothing on a regular basis. We are tubing him if he starts to sweat while eating but he sweats even when he is not eating. We are hoping his weight is up because he has been getting "free" caleries. He is getting tubed about three bottles a day. It is hard to tube him when we know he can eat those bottles by mouth but we also know that he needs the caleries without the effort. Boy, I hope this isn't a long time thing. He sure gets grouchy when we are tubing him and he still wants to eat his bottle. I have found that we end up trying to tube him as much as possible while he is sleeping so that he is not so grouchy. He does not like suckies so that doesn't work and is opinionated just like his daddy. I love them both!
The kids are coming back from lunch so I have to run. Hopefully this isn't too crazy. I will read it again when I get home and correct it, hopefully.
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I know his appointment will go well. I wish he was 100% AGAIN. he will be!! Have a good weekend!! Erika
ReplyDeleteErin everthing will be fine I'm so over amazed with what strength all of you deal with this situation. And I'm glad you still get so much back. I'm sure you will be rewarded for all the time and sorrow you have now. Greets to everyone, I'd love to see my nephew, sadly work keeps me really busy too.
ReplyDeleteAll my love, Ariane
Grampa H loves you little buddy. I miss you! (;+< ) XXxxooXxoOox
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