Gabriel had a x-ray this morning. The air pocket and liquid in his lungs are looking better. He will have another x-ray in a few days to make sure things are still going in the correct direction. There has been a LOT of drainage. We will not be leaving until it is significantly less, once the tube is removed he will be able to leave within 24-48 hours (depending on a much larger factor).
However, Gabriel also went for his echo today to see if the chest tube helped release pressure in his right lung and got his right valve working. The chest tube reduced pressure a very little bit. The pressure is still more than enough to alarm the doctors and surgeon. They put Gabriel on medication today to see if they can help control the pressure and get the valve working correctly. They will do a repeat echo in a few days to see if the medication is working. If it is not making a significant difference by then we will be heading to surgery. We guess the surgeon wasn't lying when he said they were going to be treating this problem aggressively and that we would know by the end of the weekend if Gabriel would be heading to surgery.
On a funny side note the medication Gabriel is on has a medical name that I can not remember but it is known on the street as VIAGRA. Yup, they put my little one on Viagra to get his little heart going. Daddy is having a field day with this news.
We realize it is going to be a bit before we get to go home. My mother is coming out and going to sit with Gabriel for the day tomorrow so that we can go home, get the bills, shower, get different clothing, and just get away for a moment. Tomorrow is the 20th, Gabriel's 6 month birthday, we had been hoping to be home by then. We chose to go home tomorrow because it is a waiting day. Gabriel is not to have any tests or anything new. We will have to bring something fun back. I will get to pick up his fun pictures from the picture place though:) SO excited!!!!
I will have to post some more pictures. Though all of this Gabriel is holding up pretty well. He is such an amazing little man!
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Gabriel sure sounds like a trooper (he must get it from his mom and dad). We will pray that the viagra does the job! Hang in there...and remember there are lots of people praying for him.
ReplyDeleteYou are being so strong for Gabriel and I know it has to be so hard. Again, I am praying for him every night! Our little boy (not born yet) has this same heart defect and I know I would want the same, for people to be praying, so I hope that gives you some comfort!
ReplyDeleteErin, it sounds like even after all you're going through today you sound like you are in good spirits. I have heard of using Viagra to treat heart conditions, but it is funny to hear of using it on a 6 month old.
ReplyDeleteMy prayer will be that God will work a miracle and that Gabriel doesn't have to undergo a second surgery. I will be checking this OFTEN for news! I think of you so much.
Have a safe journey home and back again tomorrow!
Thinking of you guys and sending lots and lots of positive healing vibes your way. Hang in there. You are doing SO well!!
ReplyDeleteI know that it's not the same, but Dylan had OHS and had a complication that required an additional surgery. I can empathize with you on that a bit...
Lots of hugs,
Laurie
We are thinking of all of you and saying sweet prayers for Gabriel.
ReplyDeleteI am constantly praying that all will get better. Have a good trip home and enjoy that home shower!!!All my best to you guys!!! Love and friendship. Erika
ReplyDeletePraying for you guys and your baby boy. Myles is on baby viagra too! It's working! Have a good day off from the hospital.
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