We will be here another day at least

Where to start?

Gabriel appears to be doing much better after getting IV fluids. He was pretty dehydrated when he was admitted. I had been worried about this from the start. That is why I took him to Hackley on Sunday. It kind of made me feel like a bad mother even though I had been trying to do everything I could to get and keep fluids in him.

A pediatric cardiologist came in this morning. He is from the same practice as our cardiologist. From his stand point things are looking great. He thinks the medication is doing what it needs to be doing. He is not sure why Gabriel is not gaining weight.

Gabriel is unable to maintain his body temperature. His hands and feet are turning blue and his skin is marbling. Some of this is new. He has had cold hands and feet ever since surgery, the rest of it is pretty new. They want to check his thyroid numbers. They think that may have something to do with his body temperature, his hands and feet and the marbling of his skin.

They are also going to call in a nutritionist. Gabriel should be gaining weight with the quantity he is eating and the fact that it is 24 calorie formula.

They are taking about ordering another swallow study. Gabriel had a chest x-ray last night. They thought he may have pneumonia due to his lungs looking wet. They have come to the conclusion upon taking a closer look that they are thinking he is aspirating into his lungs. He hasn't been able to eat correctly after surgery so they may be onto something.

Gabe is on his way home now. We were warned by our pediatrician's office that we may need to stay the night. We grabbed toothbrushes and that is about all. Hopefully we will get to go home tomorrow but who knows. I sent him home for a set of clean clothing!

Good news is that Gabriel has not thrown up in over 24 hours. He will be starting on formula slowly anytime now.

We will get somewhere. One day at a time:)